WEB DESK: India is not all Shiv Sena and Pakistan haters. In a rare act of kindness citizens in India, raised Rs1.5 million to treat a Pakistani girl who suffers from a rare disease.
Saba Tariq, 15, and her mother returned to Karachi on Tuesday after seeking treatment for Wilson’s disease- a disorder the results in accumulation of copper in the body and affects the liver and slows movement — at Jaslok Hospital.
“Saba and her mother… were extremely happy about how well the treatment worked for Saba,” Jaslok hospital CEO Dr Taran Gainchandani said on Monday.
In April-May a not-for-profit-organization Blue Bells Community — raised Rs700,000 through crowd funding for the Saba’s treatment. But it did not work well– and so she had to be flown to Mumbai again for a second treatment.
“We spread Saba’s story so far and wide that we got an American NGO, Rachel and Drew Katz Foundation, contributing Rs 4 lakh and a London-based NGO promising free supply of medicines,” said Walia, from the Blue Bells Community.
When Bluebells Community volunteers received Saba at Mumbai airport on August 24, she was wheelchair-bound, could not speak and had tremors and abnormal involuntary movements due to the severity of the disease.
“But we started her on physiotherapy as well as the alternative drug, Trientine (which helps remove copper accumulation from the body,” said liver specialist, Dr Aabha Nagral, who has been treating the teen.
Procuring the drug was not easy as it is not manufactured in India and 100 capsules cost Rs 84,000. “Saba is on two capsules a day, but it should be stepped up to five soon,” said Dr Nagral, who took the teenager to eat out in Bandra. “Saba is a fan of Salman Khan and wanted to meet him, so I took her to this theme restaurant that is inspired by the actor,” said Nagral.
Source: Times of India